top of page

SLIPPING RIB SYNDROME SUCCESS STORIES

LOGAN ALUCCI, PENNSYLVANIA, USA

Ba mhaith liom feasacht a ardú maidir le Siondróm Slipping Rib tar éis turas beagnach 6 bliana ag cuardach freagraí.

Nuair a bhí mé sa choláiste thosaigh mé go randamach le pian droma uafásach in aice le mo scapula clé.

Bhí an phian chomh dona sin gur bhraith mé nach raibh mé in ann siúl. Roimh an gcéad lá sin, bhí mé ag siúl 2 go 5 mhíle in aghaidh an lae ó bhí cónaí orm i gCathair Nua-Eabhrac, ach tar éis an lae sin d'athraigh gach rud.

 

Ó thosaigh mo phian le pian droma trom thug mo thuras chuig na mórán speisialtóirí gualainn agus droma mé. Tugadh misdiagnosis iolracha dom. Bhí an iliomad MRI agam, scananna CT, X-ghathanna, scans sainchnámh, instealltaí cortisone, bloic nerve idirchosta ... is ainm duit é. Leanann an liosta ar aghaidh agus ar. Chonaic mé na dochtúirí "is fearr" ag na hospidéil "is fearr". Ní raibh a fhios ag éinne cad a bhí mícheart le blianta. Dúradh liom nach raibh ann ach droch-staidiúir, nó drochimní, nó go raibh mé ag déanamh áibhéil go simplí nuair a dúirt mé go raibh mé 10/10 pian domhain, stiallta, díblithe ar thaobh clé mo dhroma a bhí, faoin am seo, tosaithe ag gluaiseacht thart ar mo dhroim. ribcage.

 

Faoi dheireadh fuair mé ciropractóir nua agus ar mo chéad chuairt, dúirt sí liom go raibh Siondróm Slipping Rib agam. Ós í an t-aon duine a bhí in ann faoiseamh ar bith a thabhairt dom, ghlac mé lena focal mar gheall air, agus ansin dúirt mé le dosaen dochtúirí eile go raibh SRS agam. Níor chreid éinne amháin go raibh sé ann. Dúirt siad liom "Ní féidir le heasnacha duillín".

Go tapa ar aghaidh 2 bhliain, fuair mé ar deireadh an Dr Adam Hansen i West Virginia agus bhí máinliacht gur féidir liom a rá go hionraic shábháil mo shaol.

 

Ní hamháin gur féidir le Siondróm Slipping Rib a bheith ina chúis le pian coirp díblithe, ach freisin anacair mhór mheabhrach tar éis blianta fada a bheith ag fulaingt agus a bheith á rá go bhfuil sé ar fad i do cheann. Agus é seo á scríobh tá mé 4.5 mí sa phost op agus mothaím thart ar 80% níos fearr ná mar a rinne mé roimh mo mháinliacht agus creidim go leanfaidh mé ag feabhsú. Tá bealach fada le dul fós ag mo chorp agus mo intinn chun leigheas iomlán a dhéanamh ach táim buíoch as a bheith san áit cheart ar deireadh.

 

Ná tabhair suas ar do thuras riamh. Ná glac le haghaidh freagra. Iontaobhas do instincts agus do chorp. Tá súil agam go gcuideoidh sé seo le duine éigin eile na freagraí agus an bailíochtú atá tuillte againn go léir a fháil.

 

Cliceáil anseo chun físeáin Logan a dhoiciméadú anseo SRS turasanseo.

JOSEPHINE LJUNGKVIST, NORWAY

 

Chomh fada agus is cuimhin liom, tá taithí agam ar phian géar agus doiléir de bharr mo easnacha. Mar dhéagóir luath chuaigh mé chun gach cineál dochtúirí, néareolaithe, ortaipéideoirí, teiripeoirí fisiceacha, agus mar sin de a fheiceáil. Bhí X-ghathanna déanta agam, agus dúradh liom ar dtús níos mó aclaíochta a dhéanamh, agus ansin stop a chur leis an aclaíocht. Ní fhéadfadh nó go réiteodh éinne ceist an phian mistéireach a bhí orm. 

Dúirt roinnt acu liom fiú go raibh sé ar fad i mo cheann. 

 

Tar éis cúpla bliain d'éirigh mé as diagnóis a lorg agus bealach a fháil amach as an bpian, níor fhoghlaim mé ach maireachtáil leis.

Nuair a bhí mé 25 bliana d'aois bhuail mé go randamach le naprapath ag cóisir, a raibh a fhios aige faoi SRS, agus ansin thosaigh an t-aistear iarbhír dom a bheith á diagnóisíodh. Tá sé thart ar 2 bhliain anois agus máinliacht amháin níos déanaí. Bhí máinliacht agam ag Ullevål Sykehus in Osló, an Iorua. Agus é seo á scríobh táim ag fanacht le máinliacht a bheith agam ar an taobh eile, chun na cartilages sleamhnaithe a bhaint.

Is féidir leat féachaint ar fhíseáin Josefine, a dhéanann doiciméadú ar a turas ar a cainéal youtubeanseo.

Tá pian droma orm ó bhí mé 13 bliana d'aois.

Thit mé ó 3 mhéadar ar airde nuair a bhí mé 8, agus fuair roinnt scoilteanna beaga i 2 vertebrae i mo spine. Is marcach capaill mé agus thit siad uaireanta.

 In 2018 tháinig an-athlasadh ar m’ae mar gheall ar fhrithghníomh ailléirgeach. Chaill mé a lán meáchain toisc go raibh mé tinn agus sa tréimhse sin bhraith mé an t-áiteamh chun mo chorp uachtair a shíneadh agus bhraith mé cliceáil crua ar mo easnacha níos ísle, níor ghortaigh sé ag an am, ach tar éis tamaill thosaigh mo rib ag sleamhnú. , d'éirigh sé annoying agus thosaigh sé ag gortú beagán. Le 3 bliana anuas bhí orm mo rib a phopáil ar ais i bhfeidhm go minic in aghaidh an lae agus tá an phian ag dul chun cinn. Tá go leor speisialtóirí leighis feicthe agam, agus bhí cuma aisteach orthu go léir ar a n-aghaidh nuair a dúirt mé leo agus lig dóibh a bhraitheann cad a bhí ag tarlú. Dúradh liom go raibh sé rud ar bith, go mbeadh sé imithe.


Bhí go leor cuardach déanta agam ar Google agus YouTube, tar éis tamaill i dtús na bliana 2021 d’aimsigh mé roinnt vlogs ar YouTube agus d’inis vlog amháin faoin ngrúpa Slipping Rib Syndrome ar Facebook. Bhí an t-ádh agus an faoiseamh sin orm an teaghlach nua comhbhách seo a aimsiú. Tríd an ngrúpa seo fuair mé dochtúir san Ísiltír a bhí in ann SRS a dhiagnóiseadh go hoifigiúil. Ní raibh an dochtúir seo in ann cabhrú liom ar an mbealach a theastaigh uaim, ach ag druidim le deireadh 2021 d’aimsigh mé máinlia eile agus rinne mé máinliacht ar 20 Nollaig 2021.


Bhí an "Rib Plating Surgery" agam. Ar dtús cheapamar nach raibh ach rib amháin scaoilte, ach bhí a fhios agam go raibh níos mó ar siúl, agus le linn na máinliachta fuair siad amach go raibh tionchar againn ar 3 easnacha.

I láthair na huaire scríofa tá mé 4 seachtaine post op, tá mé fós pian máinliachta agus a ghlacadh go mall é, ach is féidir liom a rá go bhfuil feabhas agus go bhfuil solas ag deireadh an tolláin! 

NICOLE VISSER, THE NETHERLANDS

I measc mo chuid comharthaí bhí pian dian i mo easnacha, i mo chíche clé, agus timpeall an chúl. Bhí mé i bpian uafásach agus mé i mo shuí nó i mo sheasamh ar feadh achar ama agus níor chabhraigh rud ar bith liom. Ar an 28 Aibreán 2019 thuis mé sa séipéal agus thuirling mé ag deireadh pew adhmaid a rinne teagmháil le mo chliabhán easnacha chlé.

An mhaidin dár gcionn, bhí X-ghathanna agam nár léirigh aon easnacha briste. Chaith mé míonna i dTeiripe Chiropractic agus Fisiciúil. Tá 2 dhiosca bulging agam i mo dhromlach uachtarach ó thimpiste cairr in 2006, agus mar sin cheap mo Theiripeoir Fisiceach b'fhéidir gurbh é an damáiste dóibh siúd as mo thitim ba chúis le mo phian gan staonadh. Ar deireadh chuireamar ina luí ar m’oibrithe árachas comp go raibh gá le MRI, ach níor léirigh sé ach “athruithe airtríteacha” nárbh iad tráma an titime ba chúis leo, agus mar sin bhíomar ag deireadh marbh eile.


Chuir mo dhochtúir mé faoi bhráid speisialtóir ansin agus chonaic mé é i mí Eanáir 2020. D'fhéach sé ar mo X-ghathanna tosaigh agus dúirt sé go raibh m'fhadhb ag bun mo chliabháin rib. Dúirt sé liom go raibh máinlia chliabhraigh síos an halla uaidh a bhí i gceannas ar theicníc nua deisiúcháin easnacha, agus chuir sé faoi bhráid an Dr Adam Hansen mé.


Mí ina dhiaidh sin rinne an Dr Hansen diagnóisíodh le SRS. Léirigh scrúdú simplí 5 nóiméad go raibh easnacha 8, 9 agus 10 i gceist agus go bhféadfadh sé é a dheisiú lena theicníc uathúcháin úrnua. Ar 11 Márta 2020 fuair mé mo chéad obráid. Cé go raibh an phian réamh-mháinliachta imithe láithreach, go luath i ndiaidh na máinliachta thosaigh mé ag fulaingt ó jabs géara i mo bholg. Bhain an Dr Hansen de thátal as go raibh na comhuaimeanna ró-daingean agus go raibh siad ag cur isteach ar an nerve idirchosta. Ar 10 Lúnasa 2020 bhí an chéad athbhreithniú ón Dr. Hansen agam. Tar éis an athbhreithnithe d'imigh na pianta jabbing sin láithreach.

D'athbhreithnigh an Dr Hansen a nós imeachta ionas nach mbeidh gá le hathbhreithniú a dhéanamh ar dhaoine eile le go mbeidh comhuaimeanna ró-dhian. Táim buíoch a bheith ag thart ar 85-90% gnáth arís. Is bóthar deacair é seo, gan dabht ar bith, agus bhí an téarnamh dúshlánach.


Nílim ag súil go mothaím 100% riamh, ach gan an rogha deisiúcháin seo, tá a fhios agam go mbeinn i bhfad níos measa as agus gan dóchas. Tá cairde déanta agam i mo chomh-laochra SRS agus táim tiomanta cabhrú le daoine eile a mbealach a fháil tríd seo. Lean ort ag moladh duit féin agus ná glac le freagra. Ní i do cheann amháin atá sé i ndáiríre.

TINA VIAL, WEST VIRGINIA, USA

Thosaigh mo chuid fadhbanna nuair a bhí mé sa 7ú grád. Bhí popping i mo easnacha agus bhí sé míchompordach a análú, ansin tar éis cúpla seachtain d'imigh sé ach uair amháin i gceann tamaill thiocfadh sé ar ais. Nuair a bhí mé sa 9ú grád thosaigh mo easnacha ag teacht amach go dtí an pointe ina bhféadfadh tú iad a fheiceáil trí mo léine.

Bhí mé ag rith ar rith 5 mhíle agus ceann de mo easnacha popped ceart amach agus bhí mé ag streachailt chun análú agus ar tí pas a fháil amach. Bhí orm rith ar ais ar scoil agus ghlaoigh mé ar mo Mhamaí, ansin chuamar chuig cúram práinneach.


Thóg sé thart ar 6 mhí ina dhiaidh sin diagnóis a fháil agus ansin máinliacht ach san am sin chonaic mé 2 dhosaen dochtúirí. Diagnóisíodh mé le niúmóine, bronchitis, airtreapóróis, éidéime smeara, costochondritis, néaritis intercostal agus cinn easnacha díláithrithe, ansin siondróm rib slipping ar deireadh.

Faoin am seo bhí mo chuid comharthaí pianta sá leanúnach, dó leanúnach, tenderness, deacracht mhór análaithe, bioráin agus snáthaidí pian, pas a fháil amach, agus caitheamh suas. Bhí mo SRS déthaobhach agus tá sé anois 14 mhí tar éis mo chéad obráid agus agus 7 mí tar éis mo dhara obráid, an dá cheann leis an Dr Adam Hansen in West Virginia. Tá ag éirí go hiontach leis an dá thaobh anois.


Is é mo chuid focal spreagtha ná leanúint ar aghaidh ag troid ar son freagraí mar go bhfuil siad amuigh ansin. Ní rud meabhrach é nuair a thagann easnacha amach, mar sin coinnigh ort agus lean ort ag lorg freagraí.

LINDSEY DARNELL, MICHIGAN, USA

Ba é mo phríomh-symptom SRS ná popping easnacha agus pian i mo bolg agus i mo dhroim in aice le lanna mo ghualainn.

Tá hEDS agam, a diagnóisíodh tar éis mo 3ú máinliacht cromáin ag aois 23. D'fhorbair mé siondróm pian réigiúnach casta ó mo lialanna cromáin, agus thug sé seo spreagadh dom nerve a spreagadh i mo dhroim, leis an gceallra suite i mo tosaithe. Tar éis 2 lialanna droma, mar a theip ar an gcéad cheann, d'fhorbair mé pian uafásach ar ais agus rib.

Tar éis iarrachtaí iomadúla an pian droma a réiteach le instealltaí, fuilaistrithe, Teiripe Fhisiciúil, fuair mé an grúpa SRS Facebook a thug chuig an Dr. Hansen mé. Rinne mé mo chéad obráid chun easnacha 7-10 a cheartú ar mo thaobh dheis ar 10 Márta 2021. Faraor ar 27 Iúil 2021 scaoil mé stitch ag an obair (is altra mé) ag bogadh innealra X-gha. Bhí athbhreithniú agam ar mo thaobh dheis agus shocraigh siad mo thaobh clé ag an am céanna ar 22 Meán Fómhair 2021 agus tá mé ag tógáil lá go lá anois agus mé ag leigheas.

Iontaobhas do chorp, scíth fiú nuair is mian leat a bheith gníomhach, agus abhcóide duit féin i gcónaí.

JESSICA TUCKER, WASHINGTON, USA

I mí Feabhra 2016 nuair a bhí mé ceithre mhí ag iompar clainne le mo chéad leanbh, thosaigh mé pian dian i mo ribcage níos ísle. In ainneoin gur chuir sé chuig an seomra éigeandála mé go minic, agus go ndearna sé gníomhaíochtaí rialta agus codlata a chosc, díbheadh an pian mar “gnáth-phian toirchis” agus “díreach mhatánach”. Tar éis breith a thabhairt, laghdaíodh an pian ach bhí sé lingered. Cuireadh ar mo shuaimhneas mé go ndéileálainn go measartha maith le toircheas eile le beagán osteapaite. Go déanach in 2017/go luath in 2018, bhí mo dhara toirchis agam. Tháinig an phian ar ais le bhfeice agus bhí sé i bhfad níos measa an uair seo. Faoin tríú trimester, bhí mé i gcruachás iomlán, gan mé in ann codladh, ar éigean in ann siúl nó tiomáint, agus bhí cabhair lánaimseartha de dhíth orm chun aire a thabhairt do mo leanbh. Arís, níor thug éinne freagraí ar bith.


Nuair a bhí m’iníon ceithre mhí d’aois, dúirt an comhairleoir lachtaithe a bhí á fheiceáil agam, a tharla mar dhochtúir teaghlaigh freisin, “ní mór dúinn rud éigin a dhéanamh faoi d’easnacha”. Ba é an chéad uair le dhá bhliain a chuala duine éigin mé. Chuir sí chuig speisialtóir pian mé, a tharla go díreach a bheith ar cheann den bheagán dochtúirí san Astráil a chuala trácht ar SRS. Diagnóisíodh mé láithreach agus chuir sé amach mé chuig máinlia ortaipéideach a rinne dhá lialann mádh cartilage (ceann ar gach taobh). Tháinig feabhas maith orm agus, ag ceapadh go raibh an chaibidil sin thart, bhog mé ar aghaidh le mo shaol. Thosaigh muid ag pleanáil tríú leanbh, agus bhí an oiread sin sceitimíní orm taithí a fháil ar cad a bhí súil agam a bheadh ina thoircheas saor ó phian. Sula bhféadfadh sé sin tarlú, áfach, bliain i ndiaidh mo lialanna, mhothaigh mé giofógach coitianta i mo ribcage níos ísle. Laistigh de laethanta bhí mé á iompar ar ais go dtí an agony an SRS. Ar a laghad an uair seo, shíl mé, bhí a fhios agam conas é a shocrú. 

Lorg mé cabhair ó mháinlia chliabhraigh a thug cóireáil do SRS roimhe seo. Dhá lialanna eile ina dhiaidh sin, chomh maith le próiseas xiphoid díláithrithe a bhaint, ní raibh mé ag feabhsú mar a bhíothas ag súil leis. Bhí mé i bpian níos measa ná riamh, agus ag dul in olcas ó lá go lá. Bhraith na heasnacha fós éagobhsaí. Dúradh liom nach raibh sé seo indéanta, nach raibh ann ach pian nerve. Bhí a fhios agam nach raibh, ach níor bhraith mé go raibh mórán rogha agam ach leanúint in éineacht le mo dhochtúirí. Tar éis nós imeachta pian nerve a d'fhág mé le feabhas nialasach agus scamhóg pollta, chinn mé go raibh gá dom níos mó troid. Fuair mé amach an Dr Hansen i SAM agus a theicníc um uaimniú easnacha. Bhí an tuiscint a bhí aige gur féidir le múnlú a bheith ina chúis le tuilleadh éagobhsaíocht, rud a bhí fíor domsa.


 Ar an drochuair ní raibh an máinliacht le cloisteáil anseo. Ag mothú i bhfostú i gcúinne, chinn mé an léim a dhéanamh agus chuir mé máinliacht atógála iar-mháil in áirithe leis an Dr Hansen in West Virginia do mhí an Mheithimh 2020. Bhuel, tá a fhios againn go léir cad a tharla in 2020, agus ní raibh mé in ann an Astráil a fhágáil don mháinliacht. Anois beagnach go hiomlán leabaithe agus gan mé in ann aire a thabhairt do mo bheirt leanaí beaga, chas mé go mór le mo mháinlia chliabhraigh, agus neart faisnéise armtha agam. Chuaigh sé i gcomhairle leis an Dr Hansen agus thoiligh sé na lialanna a dhéanamh. Ar ndóigh, thug sé seo faoiseamh mór, ach d’fhág glas glas agus fadhbanna maidir le rochtain a fháil ar na plátaí riachtanacha go raibh orm fanacht i bpian lagaithe go dtí Samhain 2020 chun an chéad obráid a fháil, agus Márta 2021 don dara ceann. Bhí téarnamh dian. Bhí na lialanna níos casta ná na lialanna uaim rialta a bhí ag an Dr Hansen mar gheall ar m’imeachtaí roimhe seo. 


D’fhulaing mé an-phian nerve tar éis an dá lialanna agus chaith mé coicís san ospidéal an dá uair. Bhí a fhios agam mar gheall ar an excisions nach mbeadh mo easnacha a bheith ar an foirfe. Cuireadh spreagthaí chorda an dromlaigh orm i mí Iúil 2021 chun cabhrú le pian nerve leanúnach. Ní féidir liom rith nó léim, agus is cinnte nach mbeidh aon spéir-tumadóireacht i mo thodhchaí, ach is féidir liom siúl, ní chaithim mo laethanta sa leaba, is féidir liom aire a thabhairt do mo pháistí, agus fiú iad a thabhairt ar thurais shimplí. Breathnaíonn sé beagán difriúil ó roimhe seo, ach tá mo shaol ar ais agam. Agus, b'fhéidir an bheannacht is mó ar fad, tá an tríú leanbh álainn agam a bhfuil aisling againn le blianta fada ag fás go sábháilte i mo bhroinn.


  Throid mé ar feadh sé bliana, rinneadh neamhaird de, dúirt dochtúirí “bhuel, gortaítear mo easnacha freisin má phósaim iad”, agus d’inis siad “níorbh fhéidir an rud a bhraith mé”. Cuireadh iachall orm abhcóideacht fíochmhar a dhéanamh ar mo shon féin agus bhí pian agam thar aon rud a d’fhéadfainn a shamhlú roimhe seo, ach ar bhealach éigin rinne mé é. Táim thar a bheith buíoch don Dr Hansen as a chuid ama a thabhairt dom agus a chuid eolais a roinnt, agus as mo mháinlia a d’éist agus a bhí sásta teicnící nua a fhoghlaim.

Tá a fhios agam nach é an turas chun an leanbh seo a thabhairt isteach sa domhan an t-eispéireas saor ó phian a raibh súil agam leis aon uair amháin, ach is leor a bheith ceart go leor chun leanbh eile a iompar. Ba iad an leanbh seo, agus mo bheirt leanaí níos sine, mo chúis le troid.

AMANDA BERMAND, AUSTRALIA

Bhí mo thimpiste agam ag déanamh rolla eitpheile i scoil inar oibrigh mé ar ais i Lúnasa 2019. D'imir mé spórt ardleibhéil ar feadh mo shaoil ach ag 54 agus tar éis ailse chíche chinn an corp gan an cluiche a imirt a thuilleadh. D'éirigh go han mhaith liom é agus d'éirigh liom le rudaí ach nuair a chuaigh na hairíonna in olcas de réir a chéile tar éis cúpla mí chuaigh mé chuig an dochtúir.


Tar éis 18 mí bhí mé fós ag cuardach diagnóis. Cosúil le go leor againn, bhí an t-iliomad tástálacha imithe orm, dúradh liom go raibh sé i mo cheann agus thosaigh mé ar an ró-chósta imní / dúlagar dá bharr.

Ar ámharaí an tsaoil, fuair mé an Grúpa Facebook Siondróm Slipping Rib a bhuíochas le comh-fhulaing SRS agus rinne mé coinne leis an Dr Conaglen, an t-aon máinlia a d'oibrigh ag baint úsáide as teicníc Hansen sa Nua-Shéalainn.

In ainneoin an tiomáint 6 uair an chloig gach bealach rinne sé diagnóis dom laistigh de 5-10 nóiméad. Ní raibh mé in ann oibriú agus bhí orm coigilteas mo shaoil a ithe le maireachtáil.


Ar ámharaí an tsaoil choinnigh mé m’árachas leighis príobháideach agus mar sin chuaigh mé ar aghaidh le mo chéad mháinliacht ar ais i mí Eanáir 2021, ag uaimniú an 9ú agus an 10ú easnacha ar an taobh deas.

Is iar-Oifigeach Póilíní mé le 21 bliain le dúlagar agus PTSD agus mar sin chuaigh rudaí níos measa le linn mo thurais chun freagraí a fháil ar mo phian. Tá cothromaíocht an-bhreá agam anois i mo shaol.

Creidim go raibh mo SRS déthaobhach i gcónaí ach rinneamar taobh amháin ag an am. Chomh maith leis sin, ní thuigim cé chomh híogair agus a bhí rudaí i ndáiríre, rinne mé an iomarca rudaí go géar ar 4 seachtaine tar éis na máinliachta agus creidim go ndearna mé damáiste do mo dheisiúchán nua.


Tá cleachtaí lárnacha á ndéanamh agam chun iarracht a dhéanamh an méid is féidir liom a neartú roimh dháta trialach don dara máinliacht ar an 7 Márta 2022.

Tá scanadh CT 3D á fháil agam freisin féachaint an gcuideoidh sé sin le mo phleanáil athbhreithnithe ar thaobh na láimhe deise. Beidh mo mháinlia ag déanamh athbhreithniú ar an obráid atá ar an taobh dheis agus ag uaimniú na n-easnacha clé den 9-10ú freisin.

Is iontach an rud é an Dr. Conaglen agus tugann sé an-tacaíocht do mhodh an Dr Hansen.


Seo roinnt ceachtanna a d'fhoghlaim mé :

1. NÁ underestimate an coinníoll seo ... Táimid sa rás fada. Ná déan aon rud a d’fhéadfadh fadhbanna breise a chruthú ar feadh 6-8 seachtaine ar a laghad tar éis máinliachta, fiú má bhraitheann tú go maith. (Tá mé fós ag cur brú orm féin faoi sin a dhéanamh)

2. NÁ Éirigh. Is tusa an t-abhcóide is fearr leat féin agus mar sin muinín a bheith agat as do chorp agus as do chuid instinct féin.

3. Glac le cabhair. Tá solas ag deireadh an tolláin. Bíonn laethanta an-dorcha ag cuid againn (déanaim fós) ach dá mhéad a roinnimid agus a labhraímid faoi rudaí is mó is féidir linn cabhrú le daoine eile (agus b'fhéidir sinn féin). Tá na grúpaí iontach ina leith sin.

4. BÍ CINEÁL DUIT FÉIN

Ní raibh mé riamh chomh sceitimíneach le haghaidh máinliachta agus an phian a tháinig ina dhiaidh. Beidh sé pian chun críche. Tá mé an-neirbhíseach freisin. Tá an oiread sin againn a bhfuil fadhbanna comhchosúla acu agus mar sin níl a fhios agat cá bhfuil tú, cibé an bhfuil lá maith agat, nó droch oíche i bpian, "Kia Kaha, Kia manawanui" (Fan láidir, ná tabhair suas).

GINA SAMSON, NEW ZEALAND

Thosaigh mo thuras SRS 17 bliain ó shin i 2004 sa RA. Bhí 4 páistí agam, 3 cinn acu 10+lbs agus tar éis leanbh #4 thug mé faoi deara gur chliceáil ceann de mo easnacha gan phian isteach agus amach ar mo áirse chósta ar dheis. Ní fada go raibh sé ina phian domhain corrach agus mhothaigh sé mar a bhí cos leanbh brú suas faoi mo chliabhán rib, ach ní raibh mé ag iompar clainne. Thar na blianta atá romhainn bhí colonoscopies, ionscópacht agus ultrafhuaime uachtair bhoilg iomadúla agam. Tháinig gach ar ais gnáth. “Caithfidh sé a bheith IBS” a dúirt siad.


In 2009 bhogamar go Ontario i gCeanada áit ar lean mo chuid comharthaí ar & as. Chuir mo dhochtúir teaghlaigh nua (an Dr teaghlaigh) chugam le haghaidh tuilleadh tástálacha. Bhí gach rud gnáth, ach lean mo phian. Bhain mé triail as flushes bladder gall ag baint úsáide as leigheas Síneach. Ritheadh clocha Gall, ach níor thug sé faoiseamh ar na hairíonna. Cuairteanna iomadúla ar an Osteopath, Naturopath, Homeopath, Cothaitheoir, Chiropractor & Fisiteiripeoir. Níor chabhraigh aon rud.


Go déanach i 2018, tar éis bogadh boscaí trom, bhí mo phian i bhfad níos measa. I bhfad níos mó tástálacha diagnóiseacha. Ansin dhúisigh mé oíche amháin le pian 10/10 ag mothú go raibh mé á sá. Ba é an píosa puzal a bhí in easnamh agus faoi dheireadh tháinig mo chuardach google suas le Slipping Rib Syndrome. Hallelujah! Go lúcháireach d'fhill mé ar mo dhochtúir teaghlaigh ag súil go mbeadh a fhios aige go léir faoi SRS. D'fhéach sé go bán orm agus d'ordaigh sé níos mó faoiseamh pian. Buíochas le Dia, d'éist mo Chiropractor liom, bhraith mo chliceáil rib agus d'aontaigh sé go raibh SRS sách dóchasach.

Ar an drochuair, bhí timpiste agam in 2019 agus mé ag dul trasna an bharra tarraingthe neamhurraithe de leantóir cairr. Caitheadh suas san aer mé agus ghortaigh sé go dona mé. Ní maith do mo easnacha ach an oiread. “Cuideoidh fisiteiripe” a dúirt mo dhochtúir teaghlaigh.


Níorbh fhéidir le mo Fhisic a oibriú amach cén fáth nach raibh mé ag feabhsú. Luaigh mé SRS, bhraith sé mo rib pop, d'aontaigh liom, agus scríobh sé chuig mo dhochtúir, ag moladh bloic nerve. Chuir mo dhochtúir teaghlaigh faoi bhráid Chlinic Péine mé le “pian bhoilg”?!! Gan trácht ar mo easnacha. Dúirt an Dr sa Chlinic Péine "Ní dhéileálann muid le pian bhoilg". Phléasc mé deora ar an bhfísghlao, d'fhéach an Dr suas SRS agus thairg sé bloic nerve dom. Ansin thosaigh an phaindéim agus níor tharla na bloic nerve riamh.


D'iarr mé atreorú chuig Máinlia Ortaipéideach áitiúil. Ba é seo mo thaithí is measa le fada. Tar éis dó a rá liom, ní dócha go raibh “riocht idirlín annamh” orm, dúirt sí “Ní dhéanaim easnacha” agus dhíbhe mé. Faoin am seo bhí mé ag éirí éadóchasach. Bhí pian dian tairiseach géar orm ar an dá thaobh, pian taobh, pian uafásach ar ais thart ar mo strap-líne bra, pianta géara géara ar an dá thaobh ó am go chéile, agus deacracht codlata. Chliceáilfeadh mo easnacha isteach/amach go minic in aghaidh an lae agus bhí turais charranna uafásach.


ANSIN fuair mé amach an Dr Adam Hansen in West Virginia. Nóiméad Hallelujah #2! Fuair mé amach freisin an grúpa SRS Facebook. Go tobann, fuair mé an bunch iomlán daoine a raibh na hairíonna céanna agamsa! Sheol mé nasc chuig mo dhochtúir teaghlaigh chuig seimineár gréasáin an Dr Hansen. Ina dhiaidh sin bhí an comhrá éasca. “Seans go bhfuil an ceart agat” ar seisean! Rinne mé an glaoch go dtí oifig an Dr Hansen.

Ag taisteal ó Cheanada go SAM agus mé féin ag íoc as an obráid, bhí an rogha agam an coinne diagnóiseach a bheith agam lá amháin, le máinliacht an chéad lá eile - an-scary! Cad a tharlóidh má bhí mé mícheart faoi SRS? Thiomáineamar 8+ uair an chloig go dtí West Virginia go luath i mí Dheireadh Fómhair 2021. Bhí sé nimhneach mar chiallaigh an phaindéim go raibh teorainn talún SAM/Ceanada dúnta, ach rinneamar é. Bhí an Dr Hansen thar a bheith cineálta agus uasal agus laistigh de 5 nóiméad rinne sé diagnóisiú orm le easnacha sleamhnaithe déthaobhacha.


Bhí mo mháinliacht níos faide agus níos casta ná mar a bhíothas ag súil leis. Bhí 9ú & 10ú bristeacha cartilage rib le deformities balla cófra, SRS & neuralgia intercostal. Ní fhéadfadh leideanna mo 9idí ach sublux a fháil níos déanaí agus bhí siad an-deacair a fháil. Gearradh leideanna cartilage na 4 easnacha ar fad faoi 2 cm an ceann toisc go raibh siad fada agus crúcaí, ansin 9 gcinn & Rinneadh 10danna a umháil go dtí 8 chun caighean rib chobhsaí a athchruthú. Dhúisigh mé i bpian 10/10 agus bhí go leor moirfín de dhíth orm & fentanyl sa seomra téarnaimh, ach bhí ionadh orm go raibh mé in ann anáil dhomhain iomlán a ghlacadh faoi dheireadh. Ní raibh mé in ann é sin a dhéanamh le blianta. Dúirt an Dr Hansen go mbeadh an chéad 2 sheachtain an-phianmhar agus bhí an ceart aige! Tá an t-aisghabháil ina rógaire, tá sé sin cinnte.


Anois, agus mé á scríobh seo, tá mé 4 mhí iar-mháinliachta. Tá mé ag feabhsú go mall agus tá súil agam go n-aireoidh mé go hiontach faoi cheann 6 mhí. Táim an-bhuíoch don Dr Hansen as a theicníc cheannródaíoch. Tá sé féin, a bhean Lisa agus a bhfoireann ag UHC in West Virginia ar fheabhas, Tógadh mo ghrianghraf leis an Hansens 1 seachtain tar éis mo mháinliachta. Tá mo bhiorán sa léarscáil i mo dhiaidh, mar aon leis na céadta daoine eile a fuair máinliacht SRS leis an Dr Hansen.

Tá sé deacair a mholadh duit féin. Bí láidir, éist le do chorp, ná glac le freagra agus tá súil agam go bhfaighidh tú an cúram atá uait go luath.

ELIZABETH LIDBETTER, ONTARIO, CANADA

Nuair a bhí mé 11, bhí mo chéad eipeasóid tobann, uafásach, spasmach de phian i mo chliabhán easnacha, faoi mo lámh feadh mo thaobh agus faoi mo chíche. Bhí súil agam gur púca a bhí ann, ach thosaigh mé ar eipeasóidí comhchosúla gach cúpla mí a mhair áit ar bith ó chúpla nóiméad go dtí go leor uaireanta an chloig de phian dian nach gcuirfeadh aon rud teagmháil léi, áit nach raibh mé in ann bogadh nó fiú labhairt mar gheall ar an bpian.  ;

Bhí na tástálacha go léir agam, etc. ag an bpointe sin agus ar ndóigh rinne gach rud gnáth a sheiceáil. Fuair mé ciropractóir a d'úsáid teicnící sár-mhilis, agus thosaigh coigeartuithe rialta ansin ar stráice réasúnta, beagnach, normálta. D’fhéadfainn teannas agus twinges a mhothú go fóill nuair a dhéanfainn an iomarca gníomhaíochta nó le gluaiseachtaí casta, ach bhí gnáthshaol déagóirí ag caitheamh thart ar bhliain go leith den chuid is mó.

Is é Feabhra na bliana 2021 nuair a d’athraigh gach rud. Spreag gluaiseacht aisteach sa bhaile eachtra a mhair cúpla lá agus a bhí ar an gceann ba mheasa riamh. In ionad dul amach tar éis cúpla lá iarmharach tinn, ling an pian agus tháinig chun bheith laethúil. Bhí orm stop a chur le formhór na ngníomhaíochtaí agus scíth a ligean beagnach i gcónaí.

Bhí na tástálacha GACH agam, na híomhánna go léir, thaistil mé go Cleveland agus Indianapolis tar éis gach duine a d'fhéadfadh muid a fheiceáil go háitiúil, agus gan freagraí fós. Fuair mé an Grúpa Facebook Siondróm Slipping Rib tar éis cuardach idirlín ar na hairíonna agus bhí sé cosúil le tintrí a bhaint amach gur SRS a bhí ann.

Dúirt beirt mháinlianna éagsúla liom nach raibh sé agam. Bhí mé ina luí orm go ndearna mé. Bhí rudaí ag bogadh isteach ann, d'fhéadfainn é a mhothú agus ní raibh aon duine in ann é a dhearbhú. Ar deireadh chríochnaigh mé ag Clinic Mhaigh Eo mí Iúil seo caite, áit nár léirigh ultrafhuaime dinimiciúil mórán, ach rinne scrúdú láimhe. Bhí máinliacht go tobann an lá dár gcionn, agus fuarthas amach go raibh easnacha 9 agus 10 ar an taobh clé scoite. Bhí máinliacht i Maigh Eo beagán cabhrach. Ní raibh mo eipeasóid de phian excruciating chomh minic agus mhair am níos giorra, ach ní raibh sé ceart.

I mí Dheireadh Fómhair 2021 thaisteal muid go dtí Virginia Thiar chun an Dr. Hansen a fheiceáil. Bhí sé díreach chomh trócaireach agus iontach mar a dúirt gach duine. Bhí sé macánta linn nach raibh sé cinnte cén obráid a d’aimseofaí, mar bhí uaimeanna agam cheana féin agus bhí sé deacair a rá cé chomh slán agus a bhí rudaí. Ach bhí sé sásta gach rud a d’fhéadfadh sé a dhéanamh, agus sin é go díreach a bhí ag teastáil uainn.

2 Márta 2022, bhí teicníc atógála an Dr Hansen agam, le plátaí agus grafts leideanna cartilage, idir easnacha 8/9 agus 9/10, agus mar sin thosaigh mé ag fanacht agus ag aisghabháil.

Mar is eol do chách, is coaster sorcóir é. Bhí an téarnamh dian ar dtús. Agus anois, agus mé á scríobh táim 10 seachtaine isteach sa phróiseas iar-mháinliachta. Tá beanna agus gleannta ann. Is féidir le stráice de laethanta maithe a bheith ina dhiaidh sin tréimhse de cinn painful.

Ach. Ar thug tú na focail “laethanta maithe” faoi deara? Toisc go raibh siad agam! Níos mó laethanta maithe le 10 seachtaine anuas ná mar a bhí agam sa BHLIAIN roimhe sin de mo shaol i mo dhéagóir. Ceiliúradh na Cásca leis an teaghlach ar feadh an lae a bheadh dodhéanta roimhe seo nuair a dúirt mé níos déanaí, “Bhraith mé go hiontach!”. Tá babhtaí pian nerve agus tightness muscle fós agam a sheolann chuig an áit "cad má tá" mé, ach táim fós go luath sa phróiseas téarnaimh, agus is léir gur céim i dtreo cneasaithe é seo.

Níl mé déanta fós. B'fhéidir go mbeidh máinliacht agam ar an taobh dheis amach anseo, agus d'fhéadfadh go mbeadh ablation nerve an deis, mar gheall ar phíosa aisteach cartilage ar Rib 8 nach bhféadfadh an Dr Hansen a bhaint gan imní struchtúrach, ach táim ag mothú níos mó cobhsaíochta, agus pian níos lú.

Fós ar an turas seo, ach bhí mé ag iarraidh buíochas a ghabháil leat go poiblí do The Hansens, agus gach duine sa ghrúpa tacaíochta as an tacaíocht agus an spreagadh leanúnach - fiú nuair nach bhfuil a fhios agat go bhfuil tú ag tabhairt. Tá sé tar éis beatha a shábháil.

MAYA OYER, USA

JESSICA DE'O, ONTARIO, CANADA

Nuair a bhí mé 11/12 thosaigh mé ag comharthaí SRS. Ar dtús, thosaigh sé le pian cófra immeasurable a rinne sé beagnach dodhéanta análú. Chuirfeadh an pian seo thart ar mo bhrollach agus suas mo sternum. Thosaigh an popping thart ar bhliain ina dhiaidh sin. Dúirt na dochtúirí go bhfuil costochondritis agam agus dúirt siad liom naproxen a ghlacadh. Bhí x-ghathanna cliabhraigh i gcónaí gnáth. Bhí scanadh cnámh déanta agam fiú, rud a bhí gnáth freisin. Le himeacht ama, is dóigh liom gur fhás mo lamháltas pian. Ní raibh an phianta nerve orm a thuilleadh ag druidim timpeall mo chliabhrach le mo dhroim, ach uaireanta bheadh pianta géara orm ag dul suas mo sternum. Bhí mo bhrollach tinn i gcónaí, agus fiú amháin nuair a fuair mé echocardiogram d'fhág mé i bpian ar feadh seachtaine. Bhí pian droma thar a bheith dona orm, rud a chuir dochtúirí síos i gcónaí go dtí “tá do mhála droma róthrom”. Ar feadh na mblianta agus na mblianta, chuaigh mé gan freagraí, ag tógáil go leor naproxen, agus ag maireachtáil i bpian. 

Nuair a bhí mé 18 chuaigh mé chuig ciropractóir, a d'inis dom ar dtús faoi shiondróm rib slipping. Ar ais mar sin, ní raibh aon rud ar líne a d’fhéadfá a fháil faoi, i ndáiríre. Le himeacht ama, tháinig roinnt rudaí cosúil leis an othar Dr Oz i gcrích, agus ansin chonaic mé roinnt taighde déanta ar prolotherapy le haghaidh SRS. Chonaic mé dochtúir leighis spóirt, rinneamar ultrafhuaime (a bhí gnáth), agus phléamar prolotherapy. I ndeireadh na dála, bhí sé ró-chostasach agus dúirt sé nach ráthaíocht a bhí ann mar go raibh mo SRS le fada an lá cheana féin le blianta fada anuas, agus d’oibrigh prolotherapy is fearr ina chleachtas le haghaidh gortuithe nua.

Bhí mé ar ais go dtí cearnach a haon. Ansin lá amháin fuair mé an grúpa SRS Facebook agus d'fhoghlaim mé faoi mhodh an Dr Hansen, ach tá mé i gCeanada agus ní raibh mé in ann taisteal chuig an Dr. Hansen. Nuair a d'aimsigh mé an grúpa ar dtús, ní raibh aon smaoineamh agam cé hé an Dr Matar. Is sa bhliain 2020 a fuair mé eolas air óna chéad othar SRS, agus mhothaigh mé go raibh réiteach agam ar an bhfadhb a raibh mé i mo chónaí léi ar feadh leath de mo shaol ar deireadh.


Bhí an Dr Matar agus a fhoireann thar a bheith iontach. Ní raibh máinliacht orm roimhe seo in ainneoin tonsilectomy agus roinnt rudaí fiaclóireachta nuair a bhí mé beag, agus mar sin ba chúis imní é. Tá stair agam dul trí ionsaithe scaoill agus mé ag dul faoina bhun / ag troid go hintinneach, fiú nuair a bhíonn meabhairghalar orm. Bhí an Dr Matar agus a fhoireann i mo lámha/ag suaimhneas dom agus mé faoi ainéistéis. Bhí an obráid sciobtha, agus rinneamar an turas 5.5 uair abhaile an lá dár gcionn. Ba é sin an t-aon lá a ghlac mé mo phiolla opioid. 

Bhí an chéad 3 mhí garbh, braithim go ndeir go leor daoine an rud céanna. Tar éis an marc 3 mhí sin ná nuair a stop mé in amhras faoi rathúlacht an mháinliachta agus thosaigh mé ag féachaint ar na buntáistí a bhaineann leis. Ina dhiaidh sin bhí sé síos an cnoc den chuid is mó, ach bhí tréimhsí ama fós ann ina raibh go leor athlasadh athlasadh agam. 

Táim bliain amuigh anois agus mothaím thar a bheith iontach. Tá mé in ann i bhfad níos mó a dhéanamh nach raibh mé in ann riamh. Ní raibh sé riamh éasca dom rudaí troma a thógáil, agus bheadh pian cófra buan agam ina dhiaidh sin. Anois is féidir liom leath mo mheáchan coirp a ardú gan pian nó míchompord. Ag déanamh siúlóidí fada bheadh orm sosanna a ghlacadh mar gheall ar phianta cófra/deacracht análaithe, ach anois siúilim 1.5-2+ uair sa lá, agus oibrím go lánaimseartha mar oideachasóir réamhscoile gan aon phian ná míchompord. Sula raibh mé in ann teagmháil a dhéanamh le mo bhrollach go réidh gan phian, bhí teagmháil le haon áit pianmhar agus tinn. 

Níl aon ghníomhaíochtaí ardtionchair déanta agam, ach bunaithe ar an téarnamh go dtí seo, mothaím i bhfad níos láidre anois. Cúis ollmhór le cén fáth go raibh mo phian ar ais chomh dona roimhe seo ná go raibh croí-mhatán náid agam mar thoradh ar mo SRS. Go mall tá mé ag tógáil mo chroí-mhatáin trí rudaí a dhéanamh gach lá agus ag iarraidh a bheith feasach go comhfhiosach chun é a ghníomhachtú. Ní bhacann mo thaobh dheis mé ar chor ar bith, ní bhíonn popping, agus níl sé pianmhar. Dhéanfainn an obráid arís le buille croí dá mbeadh sé ag teastáil uaim, agus táim buíoch go deo leis an Dr Hansen as a chuid oibre chun modh neamh-ionrach a chruthú chun SRS a dheisiú, chomh maith leis an Dr Matar agus a fhoireann iontach in Ottawa. .

AUDREY THAIN-ARDIS, GEORGIA, USA

Hi, I'm Audrey, from Georgia, USA. My SRS journey started at least 13 years ago, but possibly even longer. Between a car accident when I was 18, overworking my abs as a teen (why did I do 200+ crunches most days?), being hypermobile, and finally 2 pregnancies in my mid 20s, my ribs have been painful for so many years. I started pursuing medical help for my rib pain during my first pregnancy in 2010, when the pain became unbearable. I was told it was probably round ligament pain and would resolve after delivery. When it didn't resolve, I went to many doctors for many years, most of whom told me it was all in my head.

When I showed them my lumpy deformed-looking ribs, one doctor even told me I just had an uneven fat deposit on that side! By this point, the pain and worry about not knowing what was wrong and imagining all the "what-ifs" had given me pretty bad anxiety. The pain made it hard to do my daily tasks, hard to sit on the floor and play with my kids, really hard to sit at all. Riding in a car or sitting anywhere for more than a few minutes was excruciating.

I got used to awkwardly telling people I'd rather stand when they offered me a seat, and always stayed flightily busy to avoid sitting. My lack of rib structure also made it very hard to get a deep breath. (Imagine trying to do pull-ups on a spring-- that's what trying to get a deep breath felt like!) Meanwhile I was still being told that my pain was all in my head. The lack of validation from this has such an effect on your confidence and mental health! Finally in 2018, late one night, desperately searching google for what could possibly be wrong with me, I saw something online about Slipping Rib Syndrome and it clicked! I knew this had to be it.

 

I saw a new local doctor who was just out of school and she agreed. Meanwhile, I had found the Slipping Rib Syndrome Facebook page and had started feeling so much more validated finding a whole community of people who understood exactly how I was feeling! (That little group is now over 5600 people strong!!). The Facebook group led me to Dr Adam Hansen at WVU in West Virginia, who had developed a new repair for SRS. We made the trip to West Virginia and Dr Hansen confirmed my diagnosis. My 9th and 10th ribs were fully detached, hooked, and jammed under the upper ribs. There's an intercostal nerve that runs between each rib, so that nerve was being constantly compressed, giving me pain from my abdomen all the way around to my shoulder blade.

 

I had Dr. Hansen's 3.0 surgery in February 2022 and have never regretted it! He spaced my ribs apart with cartilage grafts, loosely sutured my ribs together, and topped them off with a bioresorbable plate to hold things in place until my body could heal and develop its own scar tissue to keep itself secure. I woke up from surgery feeling much more stable, somehow taller (I didn't even realize how much I had been guarding and compensating for my ribs) and finally able to breathe freely!! Within a few months, I felt well enough to get back to daily life, travel, plant a garden, go kayaking, hiking, and generally enjoy life much more again! Now at 17 months post op, I'm so thankful to be doing pretty much anything I'd like to do and feeling so much better! If you're struggling with these symptoms, please reach out! There is hope!

KARI MORGENSTEIN, FLORIDA, USA

My journey started in 2019 when my husband and I found out I was pregnant. Around 5 weeks, I was vomiting 20 times a day and left fighting for my life and my daughter’s as well. At 8 weeks, I was diagnosed with severe Hyperemesis Gravidarum (HG). I was placed on a feeding tube through a PICC line as I was severely malnourished. I was vomiting 20 times a day until my daughter was born.

 

Around 6 months postpartum, I started to get a sharp, excruciating pain in the front of my chest near my Xiphoid. Any movement such as breathing or talking too much made it worse. This led to appointment after appointment from cardiology, rheumatology to gastro and pulmonology it felt like my husband and I spent every day either scheduling a doctor’s appointment or seeing a provider. Many providers told me nothing was wrong with me and I just needed to “push through”.

 

Luckily my husband and I were not willing to accept this. We fought tirelessly, day and night, to find answers to my debilitating pain that left me unable to care for our newborn daughter. I, fortunately, came across the Slipping Rib Syndrome (SRS) Facebook page and this led me to Dr. Adam Hansen and Ms. Lisa Hansen. We made the trip to West Virginia in January 2021 and I was diagnosed with SRS (9th and 10th rib on right side).

 

I am forever grateful to Dr. Hansen (and to so many SRS sufferers and survivors that I met on my journey) for giving me my life back and ensuring my daughter has her mommy. I am now 2.5 years out from my surgery and living life again. Pain free!!! My recovery was not an easy one, but it was totally worth it. To anyone reading this that is currently struggling with SRS or trying to find answers to your debilitating pain: You are stronger than you think.

Crying is a sign of strength. Let the tears flow! Lean on your support system and ask for help. Be kind to yourself. The SRS FB group is filled with many incredibly giving and strong individuals. We are all in this together. Use this group to support you at whatever stage you’re in. Keep advocating for yourself. Your pain is real. You. can do this. Take one hour, one minute, or just one second at a time.

363971196_670256457973807_2400629083049198303_n.jpg

HOPE WILD, MARYLAND, USA

My pain began around the end of 2016. It started out with an annoying pain on my right side liver area. I had imaging which found polyps in my gallbladder but that surgeon was kind enough to let me know he didn’t believe it was causing my pain because polyps typically don’t hurt, but the gallbladder had to come out due to their size and possibly eventually growing into cancer if they weren’t already. There were 3 and thankfully, they were benign. I went through years of pain, which over time turned into clicking with the pain. I think my right 10th rib started to come loose and eventually detached altogether.

 

The pain continued and my life began to decline more and more each day, which became years. I lost my mojo. Procedures I had: -Too much imaging (scans/X-rays) to count -Endoscopy -Pill Camera -Scoliosis diagnosis and physical therapy -Spinal injections to test for a Rhizotomy which I decided not to follow through with because I didn’t feel it would help -Colonoscopy -Whatever else I may not be recalling in this moment.

Because I was so desperate I asked my orthopedic surgeon to perform a spinal fusion at one point. Thankfully, he’s a great man/surgeon and talked me out of it because he knew it wasn’t causing the pain I was describing. I couldn’t work and had to give up my independence. I withered away because the rib pain was so bad, I could barely eat. I lived on Ensure. Not eating helped, but it still hurt all the time. My muscles atrophied and everything else began to decline due to the effects of losing nutrition and movement.

 

Eventually, I found some motivation and I got a job working from home, got on my own again and pushed through it. I kept losing weight and got down to about 92lbs. I started researching more and found out about SRS. I researched thoracic surgeons in my area to find a surgeon that appeared to have an open mind and would be willing to learn. The surgeon I chose was also an assistant professor and that gave me hope. I provided him with Dr. Hansen’s procedure information and he reviewed it, ordered ultrasound imaging and some other tests and we kept meeting and talking. He reached out to Dr. Hansen and scheduled my surgery. At this point, it was exploratory because when it came to slipping ribs, it wasn’t something he’s treated this way and when he looked into it, resection was the solution.

 

I said no thanks to that and kept asking him to look into the suturing procedure. I need my ribs to protect my organs and support my bone structure. I remember waking up from my surgery and him telling me “you were right!” My right side 10th rib was completely detached and free to float around. He used Dr. Hansen’s 2.0 technique and sutured it to the 9th. It was finally stable! That was January of 2021. I began to have the same type of pain again a few months later. I was happy to let him go back in to take a look around to figure out what was going on. It turned out that the very tip of my 10th rib cartilage had come loose and was flipping around so he snipped it off, added sutures and closed me back up. That was September 2021. I’m almost fully recovered. Recovering from the atrophy is the hardest part because like many SRS sufferers, I have other diagnosed problems like Hypermobility and severe scoliosis. I am a work in progress and I will get there! We grow through what we go through.

hope.jpg

HEATHER DOBOS, MINNESOTA, USA

I fought SRS for 16 very hard long years of my life and I’m only 38. I can now say that it’s been 3 years of living and finally experiencing the life I have always wanted and dreamed of pain free. My journey of SRS was hard frustrating painful and so many emotions I can’t even describe. I can not pinpoint exactly how why or when this happened but my decline started in 2004 when my appendix ruptured. From then many GI related issues happened.

I have had all the tests you could imagine and they all would come back negative. Being told over and over again by doctors that nothing was wrong and that it is all in my head. I had fo fight and advocate over and over again to be heard by all physicians. I was losing weight and barley being able to eat or even drink water on my surgery day I was only 96 lbs and felt like I was whithering away. I kept my determination and strength up that I was going get on the other side of whatever was going on with me. If I hadn’t kept that mindset I wouldn’t be here today.

 

In 2020 while the world was shutting down is when I really started to go downhill with pain and frustration and lack of answers. I was going to a pain clinic and a physical therapist mentioned the words that I had already circling in my head from my own research of Slipping rib syndrome. She did a dynamic ultrasound and saw my flaring ribs very clearly on my left side and said to me “how has no one ever seen this?”

 

I burst into tears and wept in her exam room and thanked her for not thinking I was crazy. With that I went home and began my own advocating and determination to find a doctor no matter how far I had to go that would help me. I found Dr. Shiroff at University of Pennsylvania. I reached out to his office and I honestly didn’t know how much more time I could deal with this physically or mentally. After a week or so his assistant reached out and we got the ball rolling with zoom meetings and medical records being sent and within one zoom meeting he could see how bad my 8th, 9th and 10th ribs were for me. On July 27th 2020 I met my knight in shining armor, Dr. Shiroff who I believe saved my life and gave me my life back to share my story and help others in the process. It’s been wonderful to be able to experience life, food and and new experiences again. I was finally healthy enough to get pregnant with our beautiful daughter and happy to announce we’re pregnant again. A dream and experience I thought I would never see in my life. I get to be me again and it feels so good.

Screenshot 2023-09-18 164545.png

OLIVIA HEATH, COLORADO, USA

My daughter Olivia swam competitively for years. During her junior year of high school, she experienced intense back pain that worsened when she swam. She also regularly experienced a stabbing pain along the front of her abdomen, and she could trigger that pain by moving her lower ribs back and forth.

Olivia's weekly physical therapy only provided temporary relief for her pain. After her symptoms worsened, leading to her quitting swimming, I turned to the internet for answers. Thankfully, I stumbled across Slipping Rib Syndrome and the Facebook support group. I spent many hours gleaning information and encouragement, and it was immeasurably helpful. Olivia’s story would not be the happy one it is today without this group.

My internet searches also led me to Dr. Diaz-Muron, a surgeon at Denver Children’s Hospital who is familiar with SRS. In October 2022, he diagnosed Olivia with bilateral SRS through a physical exam. He also ordered a dynamic chest ultrasound to confirm the diagnosis. It was such a gift to have received an answer so quickly!

The techs were puzzled during Olivia's dynamic ultrasound because they had never seen or heard of SRS before. They did their best to decipher what we were all seeing on the screen, and in the end, they diagnosed her with bilateral SRS at ribs 8-9. Later we’d discover that they had counted the ribs wrong, and it was actually Olivia’s 9th and 10th ribs that were slipping. In fact, ribs 9 and 10 on both sides had become completely separated from her costal margin.

In December, Olivia underwent a bilateral intercostal radio frequency nerve ablation (8-10 R and 10-12 L) at Denver Children’s Hospital. While this helped with the pain a bit, it created an additional problem where she temporarily lost muscle strength and tone in her lower abdomen. Thankfully, she has a great manual physical therapist who helped her through that hiccup. Olivia also had an assessment at the Denver Children’s Hospital Genetics Hypermobility Clinic. They diagnosed her with Hypermobility Spectrum Disorder but not hEDS (she got her hypermobility from her mama).

In January 2023, Olivia had a “normal” CT scan that, when converted into 3-D, revealed her detached ribs. Also in January, she had a consultation with Dr. Pieracci at Denver Health. We both really liked Dr. Pieraacci. He was kind, empathic, and communicated clearly. However, he was performing the Hansen 2.0 surgery, and through the group, I had learned that Dr. Hansen was doing a 3.0 version of the surgery. So, we decided to wait until we saw Dr. Hansen to determine the next steps.

In February, Olivia and I traveled east for consultations with Dr. Shiroff at Penn Medicine and Dr. Hansen at WVU. The consult with Dr. Shiroff went well, and we left with the sense that he is a skilled surgeon who successfully treats many SRS patients. However, he was performing a version of the Hansen 2.0 surgery, and we were eager to learn about Dr. Hansen’s 3.0 version.

Olivia’s consultation with Dr. Hansen was great—he was knowledgeable, professional, kind, and humble. He spent so much time addressing our many questions and concerns. Olivia felt seen, understood, and heard. But I won’t sugarcoat things—the surgery and recovery ahead were daunting for Olivia and left her feeling scared and overwhelmed. And as Olivia’s mom, I was terrified of making a wrong decision that could negatively affect her present and future. (I may or may not have sobbed in the bathtub when we got back to the hotel.)

It didn’t take long for Olivia, my husband, and I to agree that the 3.0 surgery with Dr. Hansen was Olivia’s best option. However, Dr. Hansen’s first available surgery slot was too close to Olivia’s first day of college. It wouldn’t allow for enough recovery time before she needed to do things like carry a backpack long distance. So, we put her on a wait list and hoped and prayed.

Over the next few months, Olivia’s pain became nearly unbearable. Simple things like sitting in class and driving in a car were extremely painful. The main thing that helped her was lifting weights; her muscle gains and the endorphins she got after each lift helped her to push past the pain, discouragement, and fear. She had been lifting for around a year, and Dr. Hansen told her that the muscle strength she had built would greatly help with her recovery. So, Olivia carefully pressed on in the gym despite her growing pain.

The day after Olivia graduated from high school, Lisa Hansen reached out with fabulous news. She said that if we could be in West Virginia in exactly one week, there was a surgery spot available for Olivia! The news was both exciting and terrifying. It was difficult for Olivia to wrap her mind around all that was about to change and around the long road to recovery, but she was all in.

Olivia’s May 24th surgery was a tremendous success! Dr. Hansen excised some costal cartilage from her 9th and 10th ribs on both sides, used the excised cartilage to create spacer grafts between ribs 8-10 on each side, sutured ribs 9 and 10 together with the grafts, and bilaterally placed bioabsorbable plates from ribs 7 through 10. The entire surgery took around three hours, and Dr. Hansen was really excited about how well everything went.

After a week at a nearby hotel, Dr. Hansen cleared Olivia to fly home to Colorado. Olivia's recovery was tough, even though she knew what to expect. Ice became her best friend, and she found ways to stay entertained and encouraged while being bed-ridden. Still, those three months were extremely difficult for her.

About those recovery months Olivia says, “Lifting was my mental and physical solace through my senior year, and to have it taken away was devastating. Those first months felt like purgatory, and recovery was filled with countless tears. SRS patients may feel hopeless during the initial months of healing after surgery, but I encourage them to make a list of all the ways their ribs held them back before the surgery so that they can check them off as they regain strength. Watching my progress kept me sane. I felt devastated right after the surgery, but in time I saw how it brought new abilities and reduced pain that I didn’t think was possible.”

 

As Olivia’s 3-month post-surgery milestone neared, she was feeling quite good. She no longer needed ice, could work as a restaurant hostess, and was back to being the social butterfly that she is. And three months after her surgery, she was back in the gym. Although she had lost most of the muscle she had built, she was determined to regain it carefully.

On August 30, my husband and I moved Olivia into her dorm to begin her freshman year of college in Arizona. To this day, we’re still in awe over the timing of her surgery. She had exactly three months to heal at home under the care of her family and without the demands of school.

With her four-month surgery anniversary just around the corner, Olivia says, “My body feels drastically better and almost normal, and I’m able to move without popping. Since it’s only been four months, there’s still some healing to be done and there’s still some soreness, but I’m able to do all the things I love. I can do so much more than I could do before my surgery with Dr. Hansen, and I don’t feel held back by my body anymore. Every minute of the recovery pain was worth it now that I get to be under a bar with a lot of weight on it again.”

Whether to have surgery, what surgery to have, and which surgeon to trust are weighty decisions. We believe that we made the right choice for Olivia and hope that the coming months and years yield even more healing and strength.

If you’ve read this far, I hope Olivia’s story has encouraged you. The road to wellness is hard, and conflicting information and experiences are discouraging. As someone who also lives with chronic pain, I know how difficult it is to keep striving for healing and pain relief. Hang in there. Keep doing the next right thing. Hold on to hope, and remember to look for the beauty around you.

Screenshot 2023-09-19 120220.png

ALYSSA LOWE, GEORGIA, USA

After suffering for more than 4 years from severe pain in my chest and abdomen, difficulty breathing, nausea, and fatigue, I had surgery to secure my slipping ribs.

I was scared to have surgery, because I read some horror stories online about how it didn't work or made things worse. I also worried about the risks and complications of anesthesia and infection. But I decided to go ahead with it, because I couldn't stand living in pain anymore. I found Dr. Christie, who is one of the surgeons in the US who specializes in slipping rib syndrome surgery.

He was very knowledgeable and compassionate, and he explained everything to me in detail. He assured me that he had a lot of experience and success with this procedure, and that he would do his best to help me.

The surgery went well, and I went home immediately after surgery. Dr. Christie removed the part of the rib that was causing the problem, and sutured the other ribs that were loose. He told me that I would feel some pain and soreness for a few weeks, but that it would gradually improve as I healed.

He was right. The recovery process has been amazing. Every day, I feel a little bit better. The pain is much less than before, and I can take less medication. I can breathe more deeply and easily, without feeling like someone is squeezing my chest. I can sleep more comfortably, without waking up in agony. I can eat more normally, without feeling sick or bloated. And I can do more things that I enjoy, like walking, reading, and spending time with my family and friends.

Dr. Christie really changed my life for the better, and I'm so thankful to him and his team. They gave me hope and relief, when I thought there was none. They treated me with kindness and respect, when I felt alone and misunderstood. They gave me back my health and happiness, when I thought they were gone forever.

If you have slipping rib syndrome and you're scared of surgery, don't let the fear stop you. Trust me, it's worth it. It's not an easy decision, but it's the best one you can make for yourself. You deserve to live without pain and suffering. You deserve to live your best life.

410537515_370306012053012_4995859721160808007_n.jpg
bottom of page